Family Resources

Websites
Hopkins Children’s- A Child’s Guide to Surgery http://www.hopkinschildrens.org/uploadedFiles/Patients_and_Families/Your_Visit/Preparing_for_Surgery/ColorMeSmall-9.2010.pdf
This is an activity book about having surgery.  Families find it helpful because it uses words, phrases, and pictures children can understand.  A great way for kids to learn about who they will meet and what will happen when they need to have surgery.

Children’s Mercy
http://www.childrensmercy.org/Patients_and_Families/Support_and_Services/Child_Life_and_Music_Therapy/Comforting_Positions/
This website shows photo examples of comfort positions that can be used to support children during procedures, such as (but not limited to) immunizations, IM injections, IV placements, NG tube placement, and drawing of blood.

Compassion Books
www.compassionbooks.com
This website has books for purchase to help children and families cope with serious illnesses and grief.

National AHEC
www.nationalahec.org
Area Health Education Centers (AHEC) provides community education and classes about health care.

Videos
YouTube
http://youtu.be/VOqIVIFN5Bo
Video of a nurse at Children’s Mercy demonstrating comfort positioning for pediatric patients.

Articles
AACN Advanced Critical Care
Helping Children Say Goodbye to Loved Ones
A great article outlining how a child life specialist and nurses can work together to support children of adult patients, particularly patients in intensive care.

Evidence-Based Practice In Action
Collaboration of Nursing and Child Life
An example of nursing and child life professionals working together to support pediatric patients and their families.

American Academy of Pediatrics
AAP Statement on Child Life Services
Policy statement regarding the effects of child life programming on pediatric healthcare.

Other Helpful Organizations
Team IMPACT
www.goteamimpact.org
Team IMPACT’s mission is to improve the quality of life for children facing life-threatening and chronic illnesses by establishing and expanding vibrant team-based support networks. Currently serving the Northeast and expanding into the Mid-Atlantic (DE, MD, VA, WV, NC) and Midwest (OH, IN, IL, MI) regions.